The adverse consequences for informal caregivers of people with dementia are well known: physical exhaustion, depression, burnout, and financial hardship. A pan-European study entitled The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study by Alvira et al. (2014) and published in JAN, considers the effect of caring for someone with dementia on informal carers. This is the second appearance in our blog of a study from the RightTimeRightPlace Consortium.
A questionnaire called the Caregiver Reaction Assessment was used in Estonia, Finland, France, Germany, Spain, Sweden, The Netherlands and the UK involving 2014 people with dementia and their informal caregivers. The questionnaire measures a range of variables related to caring for someone with dementia. While differences in demographics and care environments differed across Europe there was an essential message from the study, as expressed by the authors: Health problems were clearly associated with caregiver burden, psychological well-being and quality of life.
Alvira MC, Risco E, Caberera E, Farre M, Hallberg IR, Bleijlevens MHC, Meyer G, Koskenniemi J, Soto M, Zabalegui A, on behalf of the RightTimeRightPlace Consortium (2014) The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study Journal of Advanced Nursing doi:10.1111/jan.12528